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Musician releases charity single to raise money for rare skin condition
A singer-songwriter from Kings Langley hopes her next charity single will inspire people to support a charity that helps people suffering from a rare skin condition.
Daria Kulesh, from Harthall Lane, hopes "Butterflies", which is being released on June 1, will raise awareness for DEBRA, a charity that supports people affected by Epidermolysis Bullosa- a genetic condition that causes skin to blister and tear when touched.
The 31 year-old said: "I am hoping that people will not just buy the single, but also donate, either directly or indirectly, to the charity and raise the awareness of the cause.
"Raising the awareness of the cause as a performer is a priority.
"I’m very excited. I really am so over-whelmed by the response. The response to the idea of the song and the message I am trying to get across has been fantastic."
The money raised by "Butterflies" will go towards helping DEBRA offer specialist care and support to people suffering from EB.
The Russian-born singer, from Moscow, will be supporting Dave Swarbick at a gig later this month at Harpenden Public Halls, Southdown Road.
Daria said the event on May 24, would be an excellent platform to raise awareness of the condition.
She said: "It is a very high profile event. I will get to play the song and talk about it and the charity."
The song was inspired by the story of the "Butterfly Brothers"- Harry and Cody Churchill who both had Epidermolysis Bullosa.
The 31 year-old also read the story of Freddie Algate, from Crossmead, Watford in the Watford Observer.
She said: "Children with this condition are described as butterfly children and there are lyrics in the song that describe ‘their skin as brittle, as the wings of butterflies."
The charity single is part of Daria’s upcoming debut solo album, Eternal Child.
The song, which is being released on International Children’s Day, will be available on iTunes, Amazon and Spotify.
DEBRA conducts research to find effective treatments and hopes to find a cure for the condition, which can be broken down into three main types: Simplex, Dystrophic and Junctional.
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