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YOU,M.E & WHAT A STUPID WEEK

Photograph of the Author By Stacy Hart »

First up, a slice of vegetarian bum pie, yes you did hear correctly, it doesn’t contain any bum elements thankfully, doesn’t even look like a bum, its more of a goats cheese tart but a cafe in Brighton are serving this up on the menu because...because....well there is no reason presumably other than they thought it would be really really funny to give it a stupid name, so someone walks in and says “Can I have some bum pie and chips please”?.....oh hold me down, it’s so hysterical I’m in danger of needing two incontinent pads instead of one...............................Not.

This led me onto the discovery of other stupid named food but purely due to language differences, take “Jussipussi” and no that wasn’t an offer, its a brand of rolls that you buy in a bag from Finland, apparently Jussi is a mans name and pussi is a bag, I’m going to try and refrain from any carry on stylee comments here, I’ll leave that to you.

Then we have “Fart Juice” the sweet smelling drink from Poland, wouldn’t be so sweet smelling here in the UK but Fart in polish means good luck, and if you’re stood next to someone on a packed train that had a vindaloo the night before, you’ll need more than good luck to survive the journey, someone pass the smelling salts, sweet.

The list was endless, bum bum ice cream from Germany, plopp candy from Czech Republic, Piddle hole ale from France and I was soon giggling away in juvenile manner. Then I found one that seemed to be made just for me “Bimbo bread” from Portugal, I seem to have so many stupid moments I cant possibly blame it all on M.E and feel convinced I must carry some kind of “stupid” gene.

I cant believe I’m about to divulge my bimbo moments but here goes, I wave hallo and goodbye when I’m speaking on the phone, and sending off emails. It was my mother who first drew attention to the fact that when I said hallo or goodbye to people whilst speaking on the phone or sending emails I actually start waving, thankfully my mother is the only witness and there’s still plenty of room under the floorboards if needs be, but can you imagine if i worked in an office? How embarrassing would that be?

But I think I just about trumped that this week though on my visit to the Gospel arts manna community choir. www.gospelmanna.com Taking a break from practice i popped into the loo, and as i entered i jumped back slightly taken by surprise at someone seemingly coming out and then i nodded hallo out of courtesy before realising it was me and you walk straight into a full length mirror. So if you’ve done similar things and fancy keeping stupid company, please leave me comments underneath this blog.

I’m not entirely alone though because we have stupid postmen too, I should just point out we have two regulars who are brilliant, but the others are hit and miss. Leading up to mothers day the doorbell rang and I went straight downstairs to open the door, the postie was already back in his van indicating to pull away and left on the doorstep stood upright for all the world to see was a box that read in big letters “Fresh Cut flowers from jersey”. We not only have open front gardens, theres a school at the bottom of our road which makes it a bit like Oxford street on Christmas eve at certain times of the day, anyone could’ve walked off with it if I hadn’t of been in.

And onto stupid bin men, how come there’s a jobs-worth who says we have to leave our bins a certain measurement from the bottom of our paths otherwise they wont be emptied and yet after emptying our bins the stupid ones leave them bang smack in the middle of the public pathway? We live on a street that slopes down, with so many bins to weave in and out of, if I had a pair of skis, it was snowing and I was practicing for the winter Olympics it’d be ideal, but I’m not, so I stand and watch as all the mothers taking there kids down to the school in push chairs partake in the event instead.

As far as my health goes I’ve had stupid pain all week on and off, crushing, excruciating, all consuming. It robs me of my spirit, and it’s a consequence I loathe, it’s hard to explain, but coping with severe pain and still trying to act normal......normal for me anyway lol!, kinda wipes you out, there’s nothing left for anyone else, it’s hard to even function, it takes you to the bowels of hell and just about as low as you can go, and while I always manage to climb back out again, brush myself down and carry on, it’s a place that scares me. www.afme.org.uk

It scares me that one day it might get the better of me that I won’t be strong enough to go the distance and climb back out. I like to think I always will, but pain takes you to a place where it’s hard to recognise yourself sometimes, it even gnaws away at your thinking process leaving it with big gaping holes of irrationality.

Due to a medical mix up with medication in the past that caused a very distressing time I will no longer take anything stronger than over the counter paracetomol, and only when I’m at breaking point, they do nothing other than act as a placebo and give me half an hour of hope that somethings going to happen and the pain will ease, which in a strange way brings a little comfort...nothing happens of course, but my brain seems to fall for it every time, and five minutes or thirty minutes I’ll take what I can get.

The Beaver public house is almost demolished as we speak, the stupid brewery Scottish and Newcastle closed without warning Friday afternoon denying us our get together and one last supp with old friends. But that’s greedy profit making companies for you, very sad, but I wont dwell for too long and thankfully I managed to take some pictures before it became nothing but a pile of bricks.

Musically, the New York Site Noisehead.com are making me featured artist again today, they have been so supportive its crazy but really appreciated, while most of the buzz around my music is still coming from the USA, I’m chuffed to announce I’m gathering more UK friends, I prefer the term friends to fans, fans makes me feel kinda .....Well....stupid, it’s only me after all. Anyhow the more friends the better and whatever part of the globe I appreciate them hopping on board the Chill train and sharing my journey.

Feedbacks always appreciated, be it positive or constructive criticism so thanx to someone going by the online name of Zeeteecee from Leicester in the UK who left a comment for me yesterday regarding the demo track about M.E “Don’t say Nuthin If It Aint Worthwhile” off the 2006 RAW demo album.

“Putting a VERY DIFFICULT subject out there, praise in spadeloads to Mama Chill! Love the sound, Love the lyrics, love it! Love it! Love it! Yes M.E is very difficult indeed and the fact you chose to leave a comment on this raw bedroom demo put a smile on my face amidst the pain, so who needs paracetomol eh?

Thanx as always for stopping by, have a good weekend, stay blessed, back before Elvis :) xxx


Comments(6)

goldbox says...
8:48am Fri 19 Mar 10

Hi Stacy,

Another informative blog.......coated once more in humour...........mak
es great reading.

Sorry that you are trying to cope with so much pain...........it must be very daunting for you at times.......its good you find the strength from somewhere to cope....I admire your fighting spirit.

I sincerely hope it eases for you so as to make your days a little better... as you have enough to cope with as it is.

Stay strong dear friend....stay positive....and keep that spirit shining.

Stay Blessed always.

Hugs, xxxxx.

maur.titch@ntlworld.com says...
10:39am Fri 19 Mar 10

Hi Stacy
Awesome and amusing blog again this week...as usual, and always educational too..not always to the good I might add. I can relate to too many of the "stupid" actions that you describe, so I suppose I must have that gene also, you are definitely not alone. I always gesticulate on the phone (blimey, I hope that is the right word otherwise I will look even more stupid !...or get arrested, one of the two).
I realise that chocolate is now a dirty word for you, but thank goodness it is a universal word and has no other meaning.....or does it ?? Please, nobody tell me otherwise.
Really gut-wrenched at reading your horrendous symptoms this week Stacy...and so admire your constant strength and tenacity you throw at the illness, an illness which is so abusive to your body and mind. But
you must try to keep the strength going, not just for you and all those dreams (some of which are becoming reality) but for everybody else that touches your life, and for those who want you in theirs and care for you, that's important !
Just stay strong, please.
Love Maureen x

zeeteecee says...
8:28am Tue 23 Mar 10

yoohoo!
mmm, stupid moments!
I recently fed my thyroid tablets to my family, cos i kept a few in a mug in the cupboard, the same mug i used to measure rice for the steamer!

Then, I was trying to leave the house, I was in a bit of a flap! I picked up my bag, carkeys, phone etc-pleased with myself for knowing where they all were, AND remembering them. But as i wandered up the tarmac towards the car, i realised something was not quite right, but it took afew more seconds to realise WHAT! Aha... i looked down, NO SHOES!!!!!
I could go on!

As always Stacy,
love....
Zxxx

cazsb says...
9:37pm Tue 23 Mar 10

Hi Stacy,
Sorry you have been going through a miserable time with the ME. Certainly is a harsh illness. All Ive seen and felt like the last few days is puke and nausea.
I started to go down with the local bug and felt like I was passing out and shivery. Crawling down the stairs sunday morning I decided to have a quiet day. Openeing the kitchen door the 2 little cavaliers had pulled down the bin and mush have eaten all some kinds of unmentionables, Wading through puke and other things, it took me nearly 2 hrs to clean the kitchen.
I had one dog puking in the garden all afternoon and at the same time I was taking a course of harsh antibiotics which made me feel so sick.
Didnt help the ME Stacy, and ME with stress do not mix. Unable to sleep and shattered I wish you a farewell this evening. Nighty, xxx

GONAD says...
8:55am Wed 24 Mar 10

I've got a major in stupidy so your certainly not alone on that score stacy. I'm so sorry to hear about the difficult time, it must be a difficult time on a daily basis but you seem to cope so well, so i cant imagine how bad it must get to make you so low, Apart from your friends and family i'm sure all your blog readers are thinking of you and wishing you onto a better level as you say. Well done with your music site,well done for continuing the blogs even when so poorly, hang on in there. take care. x

louise stevens says...
4:48pm Sun 4 Apr 10

Ahhhh the postie you are not alone when there ours whoever he/she may be is awful I have lost count of the number of parcels that need to be signed for that i've found waiting for me on my doorstep including (I kid you not) a credit card despite complaints nothing changes and don't get me started on their red elastic bands!!!! As for bimbo moments we all have them........ i'm just not sharing!! Still you've known me long enough to come up with some dirt on me i'm sure!!! Glad the music is going well and hope you feel less pain soon . Love as always Loux

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