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Posted on 11:58am Saturday 23rd June 2012
Friday, 22 June 2012 4pm It has been a bit of a funny week in my bowel transplant world. I went back to Oxford on Wednesday for an MOT but really came away with more of an oil change a few spark plugs replaced as opposed to the full service. What I mean by that is I didn't have a scope and biopsy but did have long discussions with the dietitian and transplant coordinator over changing my enteral feeding regime and trying to tinker with my medication routines. Does that make a bit more sense now? Probably not but humour me anyway.
Posted on 8:01am Tuesday 19th June 2012
Friday, 15 June 2012 10.45am I never knew that walking around with a feeding tube and ruck sack would attract so much attention from passers by. The odd glance or curious look maybe but to have adults staring at your "personal possessions" while you queue at the post office or are out walking the dog is a new occurrence for me. It's a feeding tube I scream, except I don't. In my mind I do but in reality I give a pathetic smile and carry on.
Posted on 9:54pm Thursday 7th June 2012
Thursday, 7 June 20127.21pm I can hear my eldest son making home made pizza so I thought that it would be a good time to get out of the kitchen and let you know what has been happening. On the cooking front I have had the thinnest victoria sandwich cake ever baked for me by my 13 year old son Nathan and I can smell cupcakes in the oven that my daughter has been making. So as you can see the cake update is going very well, the washing up is still a bit dodgy but it must simply be something to do with my kids eyesight as they seem to ignore kitchen surfaces full of cake mixture, cream, icing sugar or anything that resembles a mess. Just as a final cookery round up my wife is now in to baking bread so there is no shortage of food being put in front of me on an hourly basis.
Posted on 7:34am Friday 1st June 2012
After a week of eating and new found optimism in my bowel transplant world things started to go a little wrong again. Late last week the sickness returned and with it the usual concerns. Surely the botox couldn't have worn off that quickly? I mean it had only been a week since my injections and I don't recall seeing people's faces suddenly become all wrinkled again one week after their injections. I know that mine were in to my stomach muscles but surely the same principals apply? No it can't be the botox I kept saying. On the other hand when you really do not know why sickness starts up again that is the natural assumption.
Posted on 10:20pm Tuesday 10th April 2012
Physically I haven't made much progress this week but mentally it seems to be all over the place
Posted on 9:05pm Wednesday 4th April 2012
I thought it would all be sorted once I had the transplant but that seemed to open up a whole lot of new problems
Posted on 9:36pm Wednesday 28th March 2012
When is a biopsy not a biopsy? When it is looked at out of context with the rest of my bowel transplant predicament
Posted on 6:40pm Saturday 24th March 2012
The mental challenge has proved as hard as the physical one and when you have further stomach complications you just need a plan in place to keep your sanity
Posted on 9:00pm Tuesday 20th March 2012
Although everything is going well with the transplant it is the little things that cause problems